The Booty Report

News and Updates for Swashbucklers Everywhere

Arrr! EMA be tossin' neurodegenerative potions overboard, claimin' they ain't fit for a scallywag’s ailin' noggin!

2024-10-18

Arrr, the EMA scoured the treasure map of Masitinib for the ALS scourge and Translarna for the Duchenne mischief, only to hoist the Jolly Roger on their first refusals! Aye, Medscape be spoutin' the news!

Ahoy mateys! Gather 'round as I spin ye a yarn 'bout the foul waters of the EMA, the scallywags who be judgin’ the fate of our beloved potions! Aye, they took another gander at the magic elixir known as Masitinib, meant to battle the treacherous beast called amyotrophic lateral sclerosis. But lo and behold! The wretched EMA declared once more, “Nay, ye shan’t pass!” They be as stubborn as a barnacle on a ship's hull!

Now, don’t ye be forgettin’ Translarna, the hope for lads strugglin’ with the plight known as Duchenne. The EMA be givin’ that one the cold shoulder too, confirm’n their previous refusals like a ship’s captain refusin’ a mutinous crew! Aye, these bureaucratic landlubbers be stickin’ to their guns firmer than a ship’s anchor in a storm!

So here we be, stranded on the shores of disappointment, with the winds of approval not blowin’ in our favor. But fear not, ye hearty souls! Let us raise a tankard o’ grog to the brave souls still fightin’ for these remedies! For in this grand adventure, the tides may yet turn, and we’ll sail to brighter horizons! Avast, and may the winds of fortune favor us yet!

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