The Booty Report

News and Updates for Swashbucklers Everywhere

Arrr, I be keeling over from a wretched plague! Let not landlubber bureaucrats meddle in me doctor’s remedy!

2025-02-22

Arrr, at the ripe age of 23, I be battlin’ a scallywag of a disease that sent me brother to Davy Jones’ locker! I toil in the land of biotech, savvy to wondrous cures afloat. Let the government hoist the sails and let us set sail to try ‘em!

Avast ye scallywags! Let me spin ye a yarn o’ me life, filled with both grit and mirth. At the tender age of six, I be diagnosed with a wretched disease that be layin’ me low. By eleven, I lost me sea legs and now, at the ripe age of 23, I be battlin’ for me life and the lives of all those cursed with rare ailments. But blow me down! The federal government be standin’ in the way like a barnacle on me hull!

Countless souls in these here waters be sufferin’ from maladies, yet the beauteous dawn of personalized medicine be stymied by regulatory storms. Aye, I be stricken with Duchenne muscular dystrophy, a vile beast that robs me of me muscles and strength. I resolved not to let this scallywag disease define me, so I founded a nonprofit, became a bestselling author, and even dabbled in the Hollywood seas!

Me heart be heavy for the loved ones lost to DMD, including me dear brother. Yet, I be holdin’ a glimmer of hope for the future, as innovation in the med’cal field be settin’ sail. We need to cut through the bureaucratic fog and let the good doctors and I decide how to fight this cursed affliction, lest I be lost to Davey Jones’ locker too soon!

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